A Justified Whiney Post about EDS
I chose the saddest looking zebra I could find, because zebras are the symbol of EDS and its how I feel now. Today I’m feeling miserable and in pain and in need of a serious vent, and hey, I have a platform that I can use, and I use it to educate about my life […]
Struggling To Breathe Lately
Back in November, I had a bad cough for over 2 weeks, and it wasn’t getting better. When I noticed I was wheezing and felt short of breath, I took my blood oxygen level with a pulse oximeter I bought during the corona period, and it showed my oxygen levels as about ninety or so. […]
How to Use GPS Trackers for Children with Special Needs Safely and Effectively
Learn how to use GPS trackers for children with special needs to ensure safety, real-time location tracking, and peace of mind. Get tips on features, placement, and best practices.
Unlocking Independence: The Power Of Assist Personal Activities
As someone with a disability that can affect my life tremendously, there are things that I cannot do without getting injured. Fortunately, I have children living with me that can help me with them, like carrying in groceries, lifting heavy things, and mopping floors, activities that are particularly problematic for me with my Ehlers Danlos […]
How Interventional Pain Management Can Help Treat Disability-Related Chronic Pain
Understanding how chronic pain works and exploring effective ways to manage it can help you find relief and enjoy the activities you normally love. In this article, we’ll discuss common causes of chronic pain and treatment options. Then, we’ll wrap up with how an interventional pain management doctor can support patients with disabilities in long-term comfort.
Why Knowledge of Having Ehlers Danlos Syndrome Actually Matters (And Crucial Safety Advice for Hypermobile People)
I went to a get together recently for support for women with hypermobility. Officially it was put out as part of the local Ehlers Danlos Foundation’s events, however, there were some women there who didn’t know what Ehlers Danlos was, but because of issues they had, they were directed there from another support group with […]
Getting Myself Custom Orthotics- Finally
Getting Myself Custom Orthotics- Finally 1 An analysis of where my feet put pressure when I stand. (Note the absence where my toes don’t even touch the ground? And how they aren’t matching?) My friend Bea has often told me how much her feet hurt her all the time but especially at the end […]
How Parents Can Avoid Injuries When Handling Children With Disabilities
People with disabilities can often need mobility assistance. When parenting a child who needs assistance with mobility, oftentimes they need to be carried even when larger (and this also applies to older children with invisible disabilities if, for example, they need to be carried when having melt downs). Because of this, it is important to […]
How to Advocate for and Accommodate Special Needs Children
As both a parent of children with disabilities and someone with disabilities myself, I understand just how crucial accommodations are—whether in school, the workplace, or daily life. If you’re a parent of a child who requires additional support, here are some tips on how to advocate effectively and ensure the right accommodations are in place. […]
My Visit to the “Burp Doctor” About No Burp Syndrome, Abelchia, Retrograde Cricopharyngeus Dysfunction (RCPD)
Me during my much skinnier days, in 2014, at 180 lbs but still with enough of a belly that I looked pregnant. I’m now about 100 lbs more than that. Warning, this post might be classified as TMI, “too much information”. Be warned if you continue reading. In my post about how Ehlers Danlos Syndrome affects […]
