Why Knowledge of Having Ehlers Danlos Syndrome Actually Matters (And Crucial Safety Advice for Hypermobile People)
I went to a get together recently for support for women with hypermobility. Officially it was put out as part of the local Ehlers Danlos Foundation’s events, however, there were some women there who didn’t know what Ehlers Danlos was, but because of issues they had, they were directed there from another support group with […]
Getting Myself Custom Orthotics- Finally
Getting Myself Custom Orthotics- Finally 1 An analysis of where my feet put pressure when I stand. (Note the absence where my toes don’t even touch the ground? And how they aren’t matching?) My friend Bea has often told me how much her feet hurt her all the time but especially at the end […]
My Visit to the “Burp Doctor” About No Burp Syndrome, Abelchia, Retrograde Cricopharyngeus Dysfunction (RCPD)
Me during my much skinnier days, in 2014, at 180 lbs but still with enough of a belly that I looked pregnant. I’m now about 100 lbs more than that. Warning, this post might be classified as TMI, “too much information”. Be warned if you continue reading. In my post about how Ehlers Danlos Syndrome affects […]
How Ehlers Danlos Syndrome Affects Multiple Parts of the Body- Part 2
As International Ehler’s Danlos Syndrome awareness month comes to a close I wanted to talk some more about how Ehlers Danlos Syndrome affects the body in ways you might not have expected, and specifically the way it affects mine. I posted part 1 already, and here is part 2. EDS, as I’ve explained in […]
How Ehlers Danlos Syndrome Affects Multiple Parts of the Body- Part 1
Alternate title: How Knowledge of Ehlers Danlos Syndrome Helped Me Make Sense of My LifeI have Ehler’s Danlos Syndrome, a degenerative genetic collagen defect disorder that is degenerative. Many people who have it go undiagnosed their whole lives, and many people only after many years of trying to figure out what is wrong with […]
All About My Visit to the Ehlers Danlos Syndrome Specialist
It has been over 3 years since I got diagnosed with Ehlers Danlos Syndrome (my first post about it was here, in May of 2021) and in that time, I’ve been to the number one EDS specialist in my country (I’ll call her Dr G), learned so much more about my body and how […]
Why I Make and Drink Lots of My Homemade Sports Drinks And My Calculating Savings
Last July, I went to the EDS (Ehlers Danlos Syndrome) expert in my country. I still plan on writing up about that visit because I found it very enlightening, but for now, I want to share one of the changes I have made to my life since then. Through this doctor it was confirmed that […]
New Blog Look, Theme, and More
My new page profile image on my Facebook page. So… does something look different around here? I should hope so. I changed a lot about the design of this blog, from the layout of the sidebar, to the menu options across the top, updated the about me section, fixed the subscription option that had been […]
Super Simple Homemade Sports and Rehydration Drink Recipe
Important update:I am reposting this post. Unfortunately, too late, I realized a mistake I made with my post, and I feel bad for anyone that used my recipe and didn’t get the exact benefits needed from it, because of my mistake. Reposting this with the corrections will hopefully get more people to see these needed […]
Details About My First Car — Why and How I Chose it, and How Much It Cost Me
I posted about getting my first car 2 months ago but I didn’t do any follow up posts because I first wanted to get everything right with it and I was afraid to jinx it… And now I’m worried about posting about it because I don’t want people to call me negative things such as […]
