Single Disabled Mom in University- An Update
I’m on my second semester of university, having taken my first course this past summer during the summer semester. Last semester I took one course and this semester, after easing myself into my studies last semester, I’m taking two courses. I wanted to give an update on how that is going, some things I’ve learned […]
Venous Eagle Syndrome: My “Idiopathic” Intracranial Pressure Has a Reason
I swear, I never intended for this blog to become a “Let’s talk about rare medical conditions” blog, but life happens. And as this blog reflects my life, and I become diagnosed with more and more things, I end up sharing what I learn, which makes this blog a repository of information about some uncommon […]
Reapplying For Disability For Myself
A couple of years ago, I applied for disability and was approved for 67 percent. That broke down as:30% psychiatric,20% for EDS,20% for fibromyalgia,20% for obesity,and 10% for hypothyroidism. In their math, that adds up to 67%. I was also approved for 65% inability to work and given a small disability stipend. From the start […]
Thrifty Goals for Siblings of Children with Special Needs
As a mother of four kids, three of whom have special needs, I’ve lived firsthand how the family dynamic shifts depending on whose needs are most pressing at any given stage. At different points in their childhood, one child’s challenges would take center stage, while the others had to adjust around it. This constant balancing […]
Our Annual Desert Camping Trip (With My Disabled Body and a Broken Foot)
I had planned on writing this post a few days ago, while we were on our annual camping trip with my bestie in the desert, but I ended up running out of juice from my phone and the internet connection was bad, so it had to wait a little bit. But don’t worry, it’s like […]
If Exercise with Disabilities and EDS Feels Impossible, Read This: Pool & Gym Solutions That Helped Me
I recently wrote about getting my first gym membership which includes membership to the pool, after over a year of trying to go to swim more regularly. Ever since I went to the EDS specialist about 3 years ago and she told me that, in her opinion, if I went to the pool to swim […]
Diagnosis of the Month Club
I got another diagnosis today. And when I posted about it on Facebook, someone joked that its almost like an “Ailment of the Month Club”. And honestly, I get it. It does seem extreme. I’ve been accused of being a hypochondriac, constantly looking for more and more issues to have. And I’ll be honest, It […]
My New Snarky T Shirt Store (And More)
My step brother changed my life. Ok, that sounds a little funny to say, but in a way he did. Ever since I met him for the first time and he was wearing a shirt that said “Sorry I’m late, I didn’t want to come”, I fell in love with those types of shirts. I […]
Back in the Hospital
Hopefully soon I’ll have blog posts to share that aren’t just about my current health issues… because they’re probably getting boring to read, and to be honest, I’m getting bored about writing about it, but I still need to update y’all about what is going on because I have many concerned people. For those that […]
Update On My Brain Pain… And Vision Issues
I’m in pain, if you haven’t figured it out from the title of this post and this picture…. And this is both a vent and an update. I mentioned like two weeks ago that I was diagnosed with idiopathic intracranial hypertension and hospitalized. (For a more thorough explanation of what it is, see that post.) […]
