Struggling To Breathe Lately
Back in November, I had a bad cough for over 2 weeks, and it wasn’t getting better. When I noticed I was wheezing and felt short of breath, I took my blood oxygen level with a pulse oximeter I bought during the corona period, and it showed my oxygen levels as about ninety or so. […]
My Visit to the “Burp Doctor” About No Burp Syndrome, Abelchia, Retrograde Cricopharyngeus Dysfunction (RCPD)
Me during my much skinnier days, in 2014, at 180 lbs but still with enough of a belly that I looked pregnant. I’m now about 100 lbs more than that. Warning, this post might be classified as TMI, “too much information”. Be warned if you continue reading. In my post about how Ehlers Danlos Syndrome affects […]
Inclusive Classrooms – 6 Strategies for Integrating Special Education Students into Mainstream Education
I have 4 kids and 3 of them are in special education programs. My younger son was in a special ed school because he wasn’t able to understand the local language, so integrating him and mainstreaming with assistance wasn’t an option for elementary school. For middle school he was in a special ed class and […]
How Ehlers Danlos Syndrome Affects Multiple Parts of the Body- Part 2
As International Ehler’s Danlos Syndrome awareness month comes to a close I wanted to talk some more about how Ehlers Danlos Syndrome affects the body in ways you might not have expected, and specifically the way it affects mine. I posted part 1 already, and here is part 2. EDS, as I’ve explained in many […]
How Ehlers Danlos Syndrome Affects Multiple Parts of the Body- Part 1
Alternate title: How Knowledge of Ehlers Danlos Syndrome Helped Me Make Sense of My LifeI have Ehler’s Danlos Syndrome, a degenerative genetic collagen defect disorder that is degenerative. Many people who have it go undiagnosed their whole lives, and many people only after many years of trying to figure out what is wrong with […]
Unveiling the Life-Changing Magic of Hearing Aids
I was at the ENT two weeks ago and asked him for a referral to get my hearing checked. I’ve noticed I often have a hard time hearing people and need to see their lips in order to understand what they’re saying. Who knows, hearing aids might be my future. For whatever ridiculous reason, there’s […]
All About My Visit to the Ehlers Danlos Syndrome Specialist
It has been over 3 years since I got diagnosed with Ehlers Danlos Syndrome (my first post about it was here, in May of 2021) and in that time, I’ve been to the number one EDS specialist in my country (I’ll call her Dr G), learned so much more about my body and how […]
Is Buying Hearing Aids Online a Good Idea?
I like shopping online since it allows me to price compare and get things cheaper than I can usually get them in person, or sometimes find things that I can’t even buy locally. Even some medical items I get online, such as ankle and wrist braces for my wonky joints. But I’ve learned that not […]
Why I Make and Drink Lots of My Homemade Sports Drinks And My Calculating Savings
Last July, I went to the EDS (Ehlers Danlos Syndrome) expert in my country. I still plan on writing up about that visit because I found it very enlightening, but for now, I want to share one of the changes I have made to my life since then. Through this doctor it was confirmed that […]
Building a Nurturing Environment to Help Your Special Needs Kid Thrive
Parenting is a journey filled with joys, challenges, and countless growth opportunities. When a child has special needs, the journey takes on a unique set of challenges. Understanding and navigating these challenges is crucial for fostering an environment where special needs children can reach their potential. Whether special needs or not, parents can play a […]
