Back in the Hospital
Hopefully soon I’ll have blog posts to share that aren’t just about my current health issues… because they’re probably getting boring to read, and to be honest, I’m getting bored about writing about it, but I still need to update y’all about what is going on because I have many concerned people. For those that […]
Update On My Brain Pain… And Vision Issues
I’m in pain, if you haven’t figured it out from the title of this post and this picture…. And this is both a vent and an update. I mentioned like two weeks ago that I was diagnosed with idiopathic intracranial hypertension and hospitalized. (For a more thorough explanation of what it is, see that post.) […]
There Goes My Malta Trip
I was supposed to be going away to Malta today. Supposed to being the key word. Then I ended up in the ER because of a persistent headache, was diagnosed with idiopathic intracranial hypertension, and was hospitalized for 5 days. The entire time I was in the ER and in the hospital, I kept telling […]
Hospitalized?! And More Answers
Universe, I know I said I desperately needed a break from my kids — and yes, the last time I felt that way, even five days alone with COVID in an Airbnb somehow did the trick. But just to clarify: I wasn’t asking to be hospitalized for a few days as my “break” this time! […]
Painful Sleeping with EDS? This Full Body Pillow Was a Game Changer
I don’t usually do product reviews on my blog, and this isn’t a paid product review, but it is something that has changed my life for the better, so I just had to share it with you. Why EDS Makes Sleep Complicated I saw this series of hilarious T-shirts about Ehlers-Danlos Syndrome. They show two […]
A Justified Whiney Post about EDS
I chose the saddest looking zebra I could find, because zebras are the symbol of EDS and its how I feel now. Today I’m feeling miserable and in pain and in need of a serious vent, and hey, I have a platform that I can use, and I use it to educate about my life […]
Struggling To Breathe Lately
Back in November, I had a bad cough for over 2 weeks, and it wasn’t getting better. When I noticed I was wheezing and felt short of breath, I took my blood oxygen level with a pulse oximeter I bought during the corona period, and it showed my oxygen levels as about ninety or so. […]
My Visit to the “Burp Doctor” About No Burp Syndrome, Abelchia, Retrograde Cricopharyngeus Dysfunction (RCPD)
Me during my much skinnier days, in 2014, at 180 lbs but still with enough of a belly that I looked pregnant. I’m now about 100 lbs more than that. Warning, this post might be classified as TMI, “too much information”. Be warned if you continue reading. In my post about how Ehlers Danlos Syndrome affects […]
Inclusive Classrooms – 6 Strategies for Integrating Special Education Students into Mainstream Education
I have 4 kids and 3 of them are in special education programs. My younger son was in a special ed school because he wasn’t able to understand the local language, so integrating him and mainstreaming with assistance wasn’t an option for elementary school. For middle school he was in a special ed class and […]
How Ehlers Danlos Syndrome Affects Multiple Parts of the Body- Part 2
As International Ehler’s Danlos Syndrome awareness month comes to a close I wanted to talk some more about how Ehlers Danlos Syndrome affects the body in ways you might not have expected, and specifically the way it affects mine. I posted part 1 already, and here is part 2. EDS, as I’ve explained in many […]
