There Goes My Malta Trip
I was supposed to be going away to Malta today. Supposed to being the key word. Then I ended up in the ER because of a persistent headache, was diagnosed with idiopathic intracranial hypertension, and was hospitalized for 5 days. The entire time I was in the ER and in the hospital, I kept telling […]
Hospitalized?! And More Answers
Universe, I know I said I desperately needed a break from my kids — and yes, the last time I felt that way, even five days alone with COVID in an Airbnb somehow did the trick. But just to clarify: I wasn’t asking to be hospitalized for a few days as my “break” this time! […]
Painful Sleeping with EDS? This Full Body Pillow Was a Game Changer
I don’t usually do product reviews on my blog, and this isn’t a paid product review, but it is something that has changed my life for the better, so I just had to share it with you. Why EDS Makes Sleep Complicated I saw this series of hilarious T-shirts about Ehlers-Danlos Syndrome. They show two […]
A Justified Whiney Post about EDS
I chose the saddest looking zebra I could find, because zebras are the symbol of EDS and its how I feel now. Today I’m feeling miserable and in pain and in need of a serious vent, and hey, I have a platform that I can use, and I use it to educate about my life […]
Struggling To Breathe Lately
Back in November, I had a bad cough for over 2 weeks, and it wasn’t getting better. When I noticed I was wheezing and felt short of breath, I took my blood oxygen level with a pulse oximeter I bought during the corona period, and it showed my oxygen levels as about ninety or so. […]
My Visit to the “Burp Doctor” About No Burp Syndrome, Abelchia, Retrograde Cricopharyngeus Dysfunction (RCPD)
Me during my much skinnier days, in 2014, at 180 lbs but still with enough of a belly that I looked pregnant. I’m now about 100 lbs more than that. Warning, this post might be classified as TMI, “too much information”. Be warned if you continue reading. In my post about how Ehlers Danlos Syndrome affects […]
Inclusive Classrooms – 6 Strategies for Integrating Special Education Students into Mainstream Education
I have 4 kids and 3 of them are in special education programs. My younger son was in a special ed school because he wasn’t able to understand the local language, so integrating him and mainstreaming with assistance wasn’t an option for elementary school. For middle school he was in a special ed class and […]
How Ehlers Danlos Syndrome Affects Multiple Parts of the Body- Part 2
As International Ehler’s Danlos Syndrome awareness month comes to a close I wanted to talk some more about how Ehlers Danlos Syndrome affects the body in ways you might not have expected, and specifically the way it affects mine. I posted part 1 already, and here is part 2. EDS, as I’ve explained in many […]
How Ehlers Danlos Syndrome Affects Multiple Parts of the Body- Part 1
Alternate title: How Knowledge of Ehlers Danlos Syndrome Helped Me Make Sense of My LifeI have Ehler’s Danlos Syndrome, a degenerative genetic collagen defect disorder that is degenerative. Many people who have it go undiagnosed their whole lives, and many people only after many years of trying to figure out what is wrong with […]
Unveiling the Life-Changing Magic of Hearing Aids
I was at the ENT two weeks ago and asked him for a referral to get my hearing checked. I’ve noticed I often have a hard time hearing people and need to see their lips in order to understand what they’re saying. Who knows, hearing aids might be my future. For whatever ridiculous reason, there’s […]
