Getting My First Gym Membership
I’ve been going to physical therapy for my Ehlers-Danlos Syndrome nearly every week for the past five years. My therapist primarily focuses on manual physical therapy—realigning my joints, working on those that are tightly compressed, and relaxing my spasmed muscles. Over this time, I’ve seen minor improvements. There are periods when I experience fewer subluxations, […]
A Justified Whiney Post about EDS
I chose the saddest looking zebra I could find, because zebras are the symbol of EDS and its how I feel now. Today I’m feeling miserable and in pain and in need of a serious vent, and hey, I have a platform that I can use, and I use it to educate about my life […]
Why Knowledge of Having Ehlers Danlos Syndrome Actually Matters (And Crucial Safety Advice for Hypermobile People)
I went to a get together recently for support for women with hypermobility. Officially it was put out as part of the local Ehlers Danlos Foundation’s events, however, there were some women there who didn’t know what Ehlers Danlos was, but because of issues they had, they were directed there from another support group with […]
Getting Myself Custom Orthotics- Finally
Getting Myself Custom Orthotics- Finally 1 An analysis of where my feet put pressure when I stand. (Note the absence where my toes don’t even touch the ground? And how they aren’t matching?) My friend Bea has often told me how much her feet hurt her all the time but especially at the end […]
My Visit to the “Burp Doctor” About No Burp Syndrome, Abelchia, Retrograde Cricopharyngeus Dysfunction (RCPD)
Me during my much skinnier days, in 2014, at 180 lbs but still with enough of a belly that I looked pregnant. I’m now about 100 lbs more than that. Warning, this post might be classified as TMI, “too much information”. Be warned if you continue reading. In my post about how Ehlers Danlos Syndrome affects […]
