Hospitalized?! And More Answers
Universe, I know I said I desperately needed a break from my kids — and yes, the last time I felt that way, even five days alone with COVID in an Airbnb somehow did the trick. But just to clarify: I wasn’t asking to be hospitalized for a few days as my “break” this time! […]
Painful Sleeping with EDS? This Full Body Pillow Was a Game Changer
I don’t usually do product reviews on my blog, and this isn’t a paid product review, but it is something that has changed my life for the better, so I just had to share it with you. Why EDS Makes Sleep Complicated I saw this series of hilarious T-shirts about Ehlers-Danlos Syndrome. They show two […]
Why Knowledge of Having Ehlers Danlos Syndrome Actually Matters (And Crucial Safety Advice for Hypermobile People)
I went to a get together recently for support for women with hypermobility. Officially it was put out as part of the local Ehlers Danlos Foundation’s events, however, there were some women there who didn’t know what Ehlers Danlos was, but because of issues they had, they were directed there from another support group with […]
Getting Myself Custom Orthotics- Finally
Getting Myself Custom Orthotics- Finally 1 An analysis of where my feet put pressure when I stand. (Note the absence where my toes don’t even touch the ground? And how they aren’t matching?) My friend Bea has often told me how much her feet hurt her all the time but especially at the end […]
My Visit to the “Burp Doctor” About No Burp Syndrome, Abelchia, Retrograde Cricopharyngeus Dysfunction (RCPD)
Me during my much skinnier days, in 2014, at 180 lbs but still with enough of a belly that I looked pregnant. I’m now about 100 lbs more than that. Warning, this post might be classified as TMI, “too much information”. Be warned if you continue reading. In my post about how Ehlers Danlos Syndrome affects […]
