Why Knowledge of Having Ehlers Danlos Syndrome Actually Matters (And Crucial Safety Advice for Hypermobile People)

I went to a get together recently for support for women with hypermobility. Officially it was put out as part of the local Ehlers Danlos Foundation’s events, however, there were some women there who didn’t know what Ehlers Danlos was, but because of issues they had, they were directed there from another support group with […]

Getting Myself Custom Orthotics- Finally

Getting Myself Custom Orthotics- Finally  1 An analysis of where my feet put pressure when I stand. (Note the absence where my toes don’t even touch the ground? And how they aren’t matching?) My friend Bea has often told me how much her feet hurt her all the time but especially at the end […]

My Visit to the “Burp Doctor” About No Burp Syndrome, Abelchia, Retrograde Cricopharyngeus Dysfunction (RCPD)

Me during my much skinnier days, in 2014, at 180 lbs but still with enough of a belly that I looked pregnant. I’m now about 100 lbs more than that. Warning, this post might be classified as TMI, “too much information”. Be warned if you continue reading. In my post about how Ehlers Danlos Syndrome affects […]