Why Knowledge of Having Ehlers Danlos Syndrome Actually Matters (And Crucial Safety Advice for Hypermobile People)
I went to a get together recently for support for women with hypermobility. Officially it was put out as part of the local Ehlers Danlos Foundation’s events, however, there were some women there who didn’t know what Ehlers Danlos was, but because of issues they had, they were directed there from another support group with […]
The Link Between Children’s Oral Care And Overall Health
Teeth and cavities have been on my mind as a parent for a long time already- my first post here on the topic was all the way back in 2012. Fortunately, my other children didn’t have as many cavities as my first child did, and the adult teeth in my children (who have them) are […]
Getting Myself Custom Orthotics- Finally
Getting Myself Custom Orthotics- Finally 1 An analysis of where my feet put pressure when I stand. (Note the absence where my toes don’t even touch the ground? And how they aren’t matching?) My friend Bea has often told me how much her feet hurt her all the time but especially at the end […]
Planning Ahead to Cover Your Family’s Health Care Costs
I am very happy to live in a place with universal medical insurance, so paying for medical care isn’t something I typically worry about, other than things like rare expensive procedures like one I am contemplating doing. For many people, though, this isn’t the case, and medical debt is one of the most common types […]
The Intersection of Mental Health and Substance Use Disorders: A PMHNP’s Guide
A common fallacy is that people who are addicts and have substance use disorders are weak people, bad people, immoral people, etc… But it usually goes hand in hand with mental health issues, is actually a diagnosable psychiatric issue, and often is comorbid with other mental health issues. It’s not just about willpower; in order […]
Common Causes of Personal Injury and How to Avoid Them
Most people are not like myself, with Ehlers Danlos Syndrome, and proprioception issues, that get injured from teeny tiny things, like sitting wrong on a public transportation seat. For them, injuries are less common, and there are ways to avoid them. If you have a more normal body, here are some ways to prevent injury, […]
My Visit to the “Burp Doctor” About No Burp Syndrome, Abelchia, Retrograde Cricopharyngeus Dysfunction (RCPD)
Me during my much skinnier days, in 2014, at 180 lbs but still with enough of a belly that I looked pregnant. I’m now about 100 lbs more than that. Warning, this post might be classified as TMI, “too much information”. Be warned if you continue reading. In my post about how Ehlers Danlos Syndrome affects […]
